SO APPRECIATIVE

pick up truckWe owe thanks to many, many people for many, many things, but we would like to single out our friend Dennis Terrell.  We were caught between a rock and a hard place this week when we were setting up Apartment #5.  The mattress company failed to deliver a box spring.  That might sound like a small thing that could be rescheduled, but that wasn’t the case.  We had a transplant patient and her care giver ready to move in the next day.  ENTER DENNIS…He has been so good to us over the last couple of years by using his pick up truck to move items for us from stores, estate sales, garage sales, etc.  So I emailed him asking for his help.  And this trip was a LONG one for him.  We were asking him to pick up a box spring in Cumming to take it to North Druid Hills, probably an 80-mile round trip.  Well, Dennis’ servant’s heart kicked into action and he made the move for us, saving the day!  That servant’s heart is BIG and we are so appreciative!

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CHRISTMAS JOY

#3 Tree       #4 tree

Christmas is coming and some of our patients and caregivers will be living in the apartments, their homes-away-from-home, recovering from their transplant surgeries.   We like to add a little Christmas joy, hoping that they will turn on the tree lights, sit back, and relax, and make the best possible Christmas under the circumstances.  Along with the trees, we have a couple of other touches, and it is our hope that they will be fortunate enough to have friends and relatives visit, when possible.  We love our residents and we know, without a doubt, that they would rather be at home for the holidays.  But since that isn’t a choice shortly after surgery, we try to bring as much happiness and joy to them as we can.

THE BEST COMPLIMENT!

southern hospitalityLast week we welcomed our 20th transplant family to one of our apartments.  20th!!  The patient is a gentleman who has received a new liver and his caregiver is his wife.  When I was showing the wife and her sister around the apartment, one of them said, “you must be a Southerner!”  I replied, “no, ma’am, I’m not, but I’m also not a Yankee!  I’m from the Pacific Northwest.”  Her reply:  “well, honey, just give me your passport and I’ll stamp it and make you an official Southerner, because this apartment is Southern Hospitality at it’s best!”  Made me happy!

THE BLESSINGS DON’T STOP

video 2  We have been given a wonderful gift from two people, Billy Hong (a high school friend of Brad’s) and Lori Geary (formerly of WSB TV) in the form of a video for the foundation.  Last Friday we all met at Apartment #4 for Lori to interview, and Billy to video, our current transplant patient and his care giver, Steve and Diane.  It was fascinating to watch these professionals do what they do best.  First Diane was interviewed, followed by Steve’s interview.  Then the apartment was filmed, along with some random shots, which will make the video personal.  Follow up included sending pictures of the other apartments and, most importantly, pictures of Jeff.  The next step will be the interviews with Bob and Mary.  And then we will stay tuned to see the final product.  We can’t wait.  This is going to be a remarkable marketing tool and we could not be more appreciative!  Things like this just don’t fall in your lap every day.  Thank you Billy and Lori!

A GREAT GIFT FROM AN OLD FRIEND

Moiras Quilt  This quilt arrived at my front door today.  It is a beautiful child’s quilt, handmade by my childhood friend, Moira.  The colors are amazing.  We have decided that this quilt will be a wall hanging in the next apartment that we put together for our next little transplant patient from Children’s Hospital.  Along with the quilt came so many memories of fun days that we had as kids and teens.  Moira and I were part of a trio made up of Moira, Mary and Joan.  And did we ever have fun back in the day together!  We were the typical girls who spent hours on the phone, had many, many sleep overs where we did more talking than sleeping.  We drove around in my ’66 Chevy Malibu, eating hamburgers and fries at Dick’s.  We argued, made up, forgot about the argument and went on just having fun together.  They were good days.  Now we are all grandmas!  I found this quote, which pretty much sums things up:  “You don’t have to have anything in common with friends that you’ve known forever.  You’ve got your whole life in common.”

John Hollingsworth Moves from the Big Peach to the Big Apple

On Friday evening, June 29th, we attended a party in honor of our friend and Board member, John Hollingsworth, as a send-off to the next phase of his incredible life.  John entered our lives at a time when we desperately needed someone to write our Business Plan.  We met him for lunch, told him about the foundation, and he agreed to come on board.  To say the least, John is an incredible young man.  He is currently an investment banker at RBC Capital Markets, and formerly an infantry officer in the U.S. Marine Corps. He received his undergraduate degree from UGA and an MBA from Emory University.  And on top of all of that, and most importantly, he is a genuinely great human being.

The party was held at the Millennium Gate Museum.  The Millennium Gate Museum is a triumphal arch and Georgia history museum located in Atlanta, on 17th Street in the Atlantic Station district of Midtown. Based on the Arch of Titus, the monument celebrates peaceful accomplishment, with special attention paid to Georgia’s history and people. As of 2011, it is the largest classical monument to have been dedicated since completion of the Jefferson Memorial in Washington, D.C. The arch inscription reads, in Latin: “This American monument was built to commemorate all peaceful accomplishment since the birth of Jesus Christ in the year of our Lord, MM.”

It was an incredible evening honoring John, held in a most incredible place, attended by a group of John’s friends, who he described as the people most important and most influential in his life.  The Evans family wishes you all the best, John, as you embark on this new venture.  We thank you for taking the lead in forming our business plan.  It is going to make all the difference in the next phase of our foundation.  We will look forward to your return visits to Atlanta.  We love you!

 

APARTMENT #4 OPENS!

Apt #4 Living Room  Apt #4 Dining Room  Apt #4 Red Room   On June 14th, we opened Transplant Apartment #4!  This apartment was furnished and decorated with Children’s Hospital patients and families in mind.  It comfortably sleeps 5-6 and there is a pack and play available, along with toys and games.  It’s unique.

On the day it was opened, our first care giver moved in.  Her husband is a double-lung transplant patient, who will be released from the hospital soon in order to move into the apartment.

Every week we are discovering how much what we are doing is needed.  Over the last two weeks, we have had to turn away five families.  So we will soon begin working on Apartment #5.

Another Learning Experience

When things have been running perfectly for almost a year, it’s pretty amazing when you run into a major problem.  Our problem:  We had a family move into one of our apartments on a Thursday.  It was far from the “normal” move-in.  No less than 8 people arrived to see the apartment.  What we had agreed to, as always, was a patient and a care giver; not a patient and seven others!  In addition, this particular family was not on the same page, so to speak.  Two major “players” actually couldn’t stand each other and each pulled Mary aside to tell her their side of the story.  Talk about uncomfortable!

When Mary turned over the keys and left the apartment, all of the people were still there, including the patient and the assigned care giver.  Mary called the Social Worker with some big concerns.  The Social Worker assured Mary that the only people who would be living in the apartment would be the patient and the care giver.  And she agreed to keep me in the loop about anything unusual happening.

Well, on Monday morning, Mary got a call from the Social Worker and things were not looking good.  The weekend had been total chaos.  It’s a long story that I won’t go into, but the bottom line was this:  we had to go over to the apartment and evict all of them!  The Social Worker had already told the residents that this was going to happen.  WHAT??

So Bob and Mary headed over to the apartment and found three kids living there with no care giver in sight.  This is a scary scenario for the patient.  He was doing very well, but the fact is….things could change on a dime for him, and then what were the kids going to do?   Bob and Mary’s ONLY concern was for the patient.  And it was a BIG concern.

This all ended with everyone moving out, but not before Mary had to listen to a phone call that lasted 5 minutes (Bob is my witness!) telling her what a horrible, disrespectful person she was and that this story was going to the newspapers!

So far, we haven’t seen ourselves written up in the newspaper so we’re assuming someone got their head screwed on straight.  But our concern is still all about the patient.  We can only hope that all goes well for him.  We’ll never know.

Lesson learned:  GO WITH YOUR GUT!

 

THROWN FOR A LOOP!

confusion  I guess this is just part of doing business.  Everything does not go the way we want it to all of the time.  This week we were faced with a decision we hadn’t planned on having to make.

Bob and Mary drove down to the MAA (formerly Post) Briarcliff apartment complex where we rent Apartment #1.  We went with the intent to rent Apartment #4.  But things did not go well as we got into the discussion.  Here’s the timeline:

1)   MAA requires a background check on every resident over 18 and the cost is $85.00/per.  This goes against one of our biggest and most critical goals, which is to keep our move-in process as simple as possible for our patients and care givers.    And we are not willing to spend the foundation’s money in that way.  (Post only did a background check on me and Bob, as did Belara).
2)  In addition:  Mary has been working with MAA’s Corporate office for at least 3 months to see if they would give us a free apartment under a program they call “Open Arms.”  Open Arms does exactly what JCEF does.  They are considered “corporate apartments,” which they furnish and manage.  So the person we talked to at Briarcliff was going to follow up on that possibility.  The only problem is their requirements:
  • All occupants 18 years of age or older must successfully pass a community background check.
  • Guests will need to provide a signed and dated Medical Records Authorization form.
  • Guests will be required to furnish initial documentation from the facility where they are being treated (letter of medical treatment)
  • At each six month interval from the date of occupancy of an Open Arms unit the guest will furnish updated documentation.

And all of this has to be completed before the patient or care giver can move in.  Our process is: 

  • Get a call from a social worker (which so far, has literally happened the day before discharge and approval has already been given by the Georgia Transplant Foundation or LifeLink);
  • The social worker has the family call Mary.
  • Mary meets the family to turn over the keys. 
  • DONE – No stress on the new residents
3)  We were thrown for a loop, so in the Bob and Mary way of handling stress, we drove next door to Mellow Mushroom to discuss our dilemma while we enjoyed a fabulous pizza!!!  Our conclusion:  it is what it is, but it won’t be for us.  We have a very big problem with an apartment requiring personal information for a 2-3 month stay.  Our goal from Day 1 has been to make this as easy as possible for our residents.
4)  We next drove over to the Belara, where Apartment #2 is located to see if we could rent #4 from them.  They were so accommodating.  First they have a unit available next door to #2, similar floor plan.  It will be available on June 11th.  So we did the application and #4 is in the works.  In addition, they waived most of the deposits.  Up front we only have to pay $200 + a prorated first month’s rent.  And yes, they are aware of the MAA requirement, but they do not have the same requirement.
5)  Today we got an email from Belara saying another apartment (in line, physically,  with #2 and #4) will be available on August 31st.  So we have made the decision to give MAA Briarcliff a 60 day notice (required) on July 1st and we will simply move out of that apartment and into the next at Belara.
This will put 3 of our apartments in one place, literally lined up.
Apartment #3 is a MAA unit, so we are going to run into the same problem.  When we do, we will try to rent another Belara unit (after giving the 60-day notice).  But we will wait until that problem rears it’s ugly head.
Bottom line take away, which we realized at the Mellow Mushroom:  God is sending us in a different direction.  And we say that because this week we were presented with a new idea about places to rent.  Our Real Estate Advisor, Ryan, showed us a triplex that was up for sale within 2 miles of Emory and CHOA.  When we have the funds, would this be a possibility….3 apartments in one house?  Maybe.  None of what just happened is a coincidence.  We believe that with all of our hearts.  So right now we don’t know where we’re going exactly, but we’re listening for our marching orders! Faith will get us there!

ANOTHER SAD STORY FOR OUR FOUNDATION

Trey & Tulips   This is Charles Howard Theus III (Trey).  He is the youngest transplant patient to live in one of the apartments.  He moved in on April 10th with his mom, dad and grandma.  He was only 5 months old and was waiting for a liver transplant.  He was the sweetest little guy you could ever hope to meet and know.  He had a smile that lit up the room and he was so cuddly….just a sweetheart.  He was doing very well for about one month, when he got really sick.  And sadly, on May 11th, he passed away.  It’s hard to express our feelings.  His passing, of course, opened Jeff’s story for us once again.  What we are learning is this:  we are doing much more than providing a place for transplant patients to live.  We are getting attached to them in one way or another (it can’t be helped).  It’s not always easy, but it is definitely the most rewarding part of everything that we are doing.  If God can use our pain to help someone else deal with theirs, we are more than happy to let Him use us.

Mary and Brad attended his funeral in Jesup, Georgia.  It was a comforting service but we had to admit that it really difficult to  look at a little, tiny coffin.  But we remembered that only Trey’s body was in the coffin.  Baby Trey is now in the arms of Jesus, safe and well.  For that we are grateful.  But the other side of that coin are the ones left behind.  Our prayers are for his mom and dad and grandma.  He was their world and they are crushed.